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What it’s like to have Tourette’s — and how music gives me back control | Esha Alwani

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Esha Alwani began writing songs when she was six years old, shortly after being diagnosed with Tourette syndrome. And she noticed something amazing: whenever she played music, her involuntary tics suddenly went away. Listen along as Alwani explores the power of music and delights the audience with an ethereal performance of her piano ballad "I'm Not Loving You (My Mask)."

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35 Comments on What it’s like to have Tourette’s — and how music gives me back control | Esha Alwani

  1. Adam Steeber // 23rd April 2019 at 4:40 pm // Reply

    Wow, she can speak better than I can! Amazing countenance! A great example of succeeding in the face of adversary.

  2. An Irish person // 23rd April 2019 at 4:41 pm // Reply

    Got tourettes syndrome, don’t leave the house, I should do something like this

    • An Irish person you absolutely should

    • Listen, if people are going to judge you or look at you weird, they are naive and for the most part not stupid but unwilling to educate. I hope you get my point. You do you and let nobody make you feel uncomfortable

    • Damon Salvatore // 23rd April 2019 at 9:22 pm // Reply

      you absolutely should…..

      i don’t know whether you would find this information helpful or not but there is a Bollywood movie named “Hichki (2018)” in which the teacher have tourette’s syndrom….. at one point this movie help us understand this syndrom and people dealing with it, on the other it shows how you can turn your different-ability into your strength…. watch it in your spare time…

    • Swearing all the time? Could just be the fact you’re Irish, Bro! 😉 lol

  3. Soul Inscribed // 23rd April 2019 at 4:46 pm // Reply

    Ok, who cried when she started singing …

  4. not proven by science,
    neurological deficiencies is shown to bring out the best in people.

  5. She has a beautiful voice! Such a great singer!

  6. Mushroomancer // 23rd April 2019 at 4:54 pm // Reply

    I thought I was a heartless person, then I watched this. Thanks.

  7. This is the kind of TEDS talks that I really enjoy. It’s nice to hear someone eloquently tell people about their affliction. Tourette’s being like the hiccups and living with that your whole life would be quite a challenge. At least her tics sounds like a cute woodland animal, lol. Her voice is amazing too! Hope to hear more from her in the future.

  8. her voice is SO beautiful!!

  9. I wish this brave young woman all the best

  10. bananashaveice // 23rd April 2019 at 5:04 pm // Reply

    Love her strength & determination & how she has found a calming respite in creating beautiful music!

  11. Debolina Tarafdar // 23rd April 2019 at 5:06 pm // Reply

    Her tics are like little laughs^_^:-)

    • Like a babies giggle. So cute. My husband’s tic is a loud “weyangh” accompanied by a full body twitch which hurts his spine.

  12. It’s a spectrum, ticks go from cute little dolphin noises like this wonderful lady does to full on body spasms.

    • Jorge Amado Soria Ramírez // 23rd April 2019 at 6:36 pm // Reply

      well, I think those weren’t the original ones, but rather the ones left. She does tell of more serious spams and other physical ticks earlier in her life, so…

  13. Michael Delgadillo // 23rd April 2019 at 5:38 pm // Reply

    I wish I could do a Ted talk on how martial arts saved me. I have Tbi and PTSD and was diagnosed with REM sleep disorder after being in matrial arts my mind and twitching improved. I can now remember movies I watch and books I read. I redid my study for Rem sleep disorder and it was negitive for all episodes.

    • Ross Andrew Higgins // 23rd April 2019 at 6:34 pm // Reply

      Nothing and I mean NOTHING is stopping you Michael. We all need to voice our concerns as well as those of us out here that yearn to listen. I will be waiting to hear your story Michael.

    • The Great Quidam // 23rd April 2019 at 7:08 pm // Reply

      Why not contact TED and ask what you would need to do to work up a talk? I’d be surprised if they didn’t have resources or references to help people develop their presentations. Your story sounds like it would have wide interest and might provide some people in need with guidance.

    • Michael Delgadillo // 23rd April 2019 at 8:20 pm // Reply

      +The Great Quidam I just emailed them thanks for the advice.

  14. I have Tourettes, full body. I tried everything. Till I tried weed. Now it’s just a neck twitch. I can live with that.

    • Did the weed stop the Tourettes? Cause that would be pretty cool. Also do you need to take it often or that one time?
      Sorry for the questions I’m just really surprised and curious

    • +Tofu Banana not fully but helps. I use the vape pens. You don’t waisted except for the first time. After that I just toke when I feel I need it; which is no too often now. It slowly decreases the quirks.

  15. Raina Mermaid // 23rd April 2019 at 6:21 pm // Reply

    “It was the music that composed me” lovely 🙂

  16. Really interesting to watch. I noticed she tics a lot more when she talks about her condition.
    When she talks about how music has freed her, her tic frequency is remarkably reduced.
    I can imagine she has practiced a lot, as freeing her from her incessant distress would have been a considerable motivator.

  17. This is why I subscribe. TED is a window to things we should know.

    Beautiful.

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